Finally we have a date for Ava's fundo surgery. If everything goes as planned, Ava will be at Mott Children's Hospital in Ann Arbor on December 13. Her surgeon, Dr. Hirschl, comes highly recommended and has a list of credentials as long as my arm. I am confident that he is one of the best and will take good care of our girl. I sent along a full page of questions with Ava's mom and dad, and the doctor patiently addressed all of them.
I am so afraid of Ava having general anesthesia. I think it scares me more than the surgery. I know the benefits outweigh the risks, but even the tiniest possibility of losing Ava makes me physically ill. Fortunately, her heart is holding its own. The SVAS is not improving, but it also isn't getting any worse.
I haven't elaborated much on Ava's reflux problems, but she suffers so much. The poor little thing retches and vomits daily, sometimes many times a day. If her tummy is bothering her she can gag just looking at a sippy cup. She's still on a twice daily regimen of Prevacid and Miralax, and three doses per day of Reglan. This has been going on since she was born, with no improvement. So, yeah, she needs the fundo surgery. Who knows? She might even make it past 19 pounds once she stops vomiting.
I have had such a hard time writing anything lately. It feels like work! It's either ADD or just plain laziness. I have so many things I would like to share through this blog, but I can't seem to force myself to get the details from my brain to the keyboard. I apologize and hope to get my groove back one of these days.