Update: Ava had a stat upper GI today (Monday, December 17, 2007)because the docs can't figure out why she can't stop vomiting. She's even vomiting in her sleep, poor baby. Our feeling is that she is being overfed, but the experts don't agree. They are keeping her yet another night for observation. We are praying that she is better soon. She deserves better than this.
Ava is still in the hospital. The poor little thing keeps falling through the cracks, so to speak. Someone "forgot" to write orders for her pain meds, consequently her morphine was taken away and replaced with simple Tylenol. Every time she moves she does that silent scream that tells us she hurts so bad she can't even speak. She has been retching and vomiting. Her g-tube keeps backing up. Her doctor has the bedside manner of Hannibal Lecter. Michigan is in the midst of a wicked snowstorm that is threatening to paralyze traffic. And Ava's birthday is five days away.
What have we done?
Ava's hospital stay hasn't been all bad. We were blessed last evening with a wonderful nurse, Martha, whom Ava loved immediately. As soon as Martha said hello, Ava started smiling and blowing kisses to her. Also, some angel saw to it that orders were written for Tylenol with codeine, which really seems to help. To top it all off, John, the host, brought Ava a VCR and a collection of Barney videos, which she seems to adore. Boy, does that bring back memories! That purple dinosaur is going to live forever.
Best of all we have been receiving great advice and moral support from Danielle, a WS mom from Michigan who is an amazing source of information. Her little girl has been through this exact procedure, so Danielle has practical advice that is invaluable. Still, we are second guessing the decision to have this surgery. How do you know you did the right thing?