Ava was released from the hospital today. Basically, the past week was wasted time. Yes, she is feeling better and is now tolerating her feeds. However, we left today with no real plan of care. It's almost impossible to get the doctors to listen. It's completely impossible to get them to act. Consequently, Ava is in the same situation she has always been. Wait and see. Oh, and did I mention she has now picked up a nice respiratory infection? Just another benefit of hospitalization. Oh well, at least she is home.
We were able to visit with Whitney and little Blake. Whitney is such a beautiful girl. Pretty, smart, kind, and totally devoted to making her baby well. I don't know how she finds the strength to keep going. The PICU is not a happy place. It's noisy and just plain scary. Yet Whitney puts a smile on her face and just does what has to be done. I am so proud of her.
A HUGE thank you to Amy! She drove all the way from Indiana to visit Blake and Ava. What an amazingly thoughtful woman. Unfortunately, when she arrived Laura and Justin had gone back to the hotel to rest because Laura was just too ill to sit with Ava. So what did Amy do? Played with Ava for nearly an hour so that the nurse could take a break! See what I mean?
I am an inconsistent blogger. I don't provide as many details as I should, and I certainly could post more often. Still, all of you put up with me. When times are hard the WS grapevine kicks in and everyone rallies around. I don't know many people who have such a wonderful support system. I can't thank all of you enough. Your advice and good wishes keep me, Ava, and our whole family going strong.
Much love to all of you!
PS: Tatum's mommy, Lisa, is crazy. I have witnesses.