Thursday, August 24, 2006
Oh, The Places You'll Go! (maybe)
...Wherever you go, you will top all the rest.
Except when you DON'T
Because, sometimes, you WON'T
I'm sorry to say so
but, sadly, it's true
CAN happen to you.
Dr. Seuss nailed it that time, didn't he??
One of my co-workers became a new grandma 5 days ago. Baby Alexia is beautiful! Pink-cheeked and perfect. I'm so happy for my co-worker. So why am I so sad for me?
Occasionally I give in to the "why me's". As much as I love Ava just the way she is, I can't help but grieve for what she isn't. I have read the literature. I know it's normal to feel this way and to expect it once in awhile. But man, it just seems to blindside me sometimes. I SO wanted my granddaughter to conquer the world! I had this whole scholar/prom-queen/college grad/published author thing all mapped out. Most likely, it's just not going to happen.
I sometimes am just overwhelmed with respect for the other WS families out there who are navigating this crazy maze we call WS. It is no picnic dealing with sick babies and the endless APPOINTMENTS that come with the territory, not to mention that niggling sense that something bad could happen at any time. (Niggling?? Where in the world did that word come from??) Our family is lucky, because Ava had a great-aunt with WS. At least we have some first-hand knowledge to use. Or maybe it is worse this way. We KNOW the bad things that can happen. However you choose to look at it, this is tough stuff!
On a lighter note, Monday Ava has an appointment (yep, another one!)with her ophthalmologist for a followup on her strabismus. For six weeks her eyes have been patched on alternate days--left eye three days, right eye four days. None of us has seen any improvement, so it looks like the next step will be glasses. Can you just see this little tyke with GLASSES??? Too cute!